EDUCAÇÃO EM DIREITOS HUMANOS E ÉTICA NA PARTICIPAÇÃO DE POPULAÇÕES VULNERÁVEIS EM PESQUISA: UMA ANÁLISE DA LEI 14.874 DE 2024.

EDUCATION IN HUMAN RIGHTS AND ETHICS IN THE PARTICIPATION OF VULNERABLE POPULATIONS IN RESEARCH: AN ANALYSIS OF LAW 14.874 OF 2024.

Abstract

This article aims to analyze ethical issues underlying the participation of vulnerable groups in research arising from the recent law 14.874, enacted in Brazil on May 28, 2024. The questions that guided the work were: 1) what is the role of human rights education so that members of research ethics committees and other actors responsible for protecting the rights of vulnerable populations, such as the Public Prosecutor's Office, understand and promote the effective participation of these groups in research; and 2) what is the role of education in human rights for a definition of “essential research to this groups”, under the terms of item II of article 24 of the law, which respects the intercultural and diversity perspectives that mark plural societies where cultural, racial and socially differenciated groups interact in scientific research. The hypothesis that guided the investigation was that human rights education established from a critical perspective has the potential to increase the awareness of the actors identified by the legislation in question as responsible for guaranteeing the right to participation of vulnerable populations in research. The hypothesis in question was tested through a bibliographic review and using audiovisual material where people in vulnerable situations express their perspectives on ethics and human rights. The conclusions pointed to the relevant potential of human rights education tools for training CEP members and other professionals who have the duty to protect the rights of vulnerable groups in research, not just with formal education resources.