Sociocultural and clinical characteristics of patients with intestinal stoma and their relatives participating in a Stoma Patient Program

Authors

  • Nariman de Felicio Bortucan Lenza Universidade de São Paulo, Escola de Enfermagem de Ribeirão Preto
  • Helena Megumi Sonobe Universidade de São Paulo, Escola de Enfermagem de Ribeirão Preto
  • Márcia Maria Fontão Zago Universidade de São Paulo, Escola de Enfermagem de Ribeirão Preto
  • Luciana Scatralhe Buetto Universidade de São Paulo, Escola de Enfermagem de Ribeirão Preto

DOI:

https://doi.org/10.5216/ree.v15i3.17594

Keywords:

Ostomy, Digestive System Surgical Procedures, National Health Programs, Nursing Care

Abstract

ABSTRACT

The objective of this descriptive study was to analyze the sociocultural and clinical characteristics of intestinal stoma patients and their relatives participating in a Stoma Patient Program in a city in São Paulo. The 14 participants were either intestinal stoma patients or relatives. In-depth semi-structured interviews were performed between December/2010 and January/2011. The sociocultural and clinical characteristics of this clientele showed a predominance of working class people, of age above 58 years, with incomplete primary education, and family income below two minimum salaries. Most stoma patients had been diagnosed with cancer, with a history of adjuvant antineoplastic treatment. In spite of the relatives’ help with self-care, the patients indicated difficulties to participate effectively in the Stoma Patient Program. The analysis of characteristics indicated a need to reevaluate the strategies used in specialized care to assure greater participation, considering the clinical impairment of these patients and their dependence on family members.

Descriptors: Ostomy; Digestive System Surgical Procedures; National Health Programs; Nursing Care.

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Author Biographies

Nariman de Felicio Bortucan Lenza, Universidade de São Paulo, Escola de Enfermagem de Ribeirão Preto

Enfermeira, Mestre em Enfermagem. Discente do Programa de Pós-Graduação em Enfermagem Fundamental, nível Doutorado, da Escola de Enfermagem de Ribeirão Preto (EERP) da Universidade de São Paulo (USP). Ribeirão Preto, SP, Brasil. E-mail: nariman@usp.br.

Helena Megumi Sonobe, Universidade de São Paulo, Escola de Enfermagem de Ribeirão Preto

Enfermeira, Doutora em Enfermagem Fundamental. Professora Doutora da EERP/USP. Ribeirão Preto, SP, Brasil. E-mail: megumi@eerp.usp.br.

Márcia Maria Fontão Zago, Universidade de São Paulo, Escola de Enfermagem de Ribeirão Preto

Enfermeira, Doutora em Enfermagem Fundamental. Professora Sênior da EERP/USP. Ribeirão Preto, SP, Brasil. E-mail: mmfzago@eerp.usp.br.

Luciana Scatralhe Buetto, Universidade de São Paulo, Escola de Enfermagem de Ribeirão Preto

Enfermeira, Mestre em Enfermagem Fundamental. Discente do Programa de Pós-Graduação em Enfermagem Fundamental, nível Doutorado, da EERP/USP. Ribeirão Preto, SP, Brasil. E-mail: scatralhe@terra.com.br.

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Published

2013-09-30

Issue

Vol. 15 No. 3 (2013)

Section

Original Article