Qualidade de vida de cuidadores de crianças com transtornos do neurodesenvolvimento

Autores/as

  • Gislaine Alves Reis Universidade Federal de São Carlos (UFSCar). São Carlos (SP), Brasil. gialvesreis@gmail.com https://orcid.org/0000-0002-5790-4495
  • Jaqueline Brosso Zonta Universidade Federal de São Carlos (UFSCar). São Carlos (SP), Brasil. jaquelinezonta@gmail.com https://orcid.org/0000-0002-9602-4087
  • Beatriz Helena Naddaf Camilo Universidade Federal de São Carlos (UFSCar). São Carlos (SP), Brasil. beatriz.h.camilo@hotmail.com https://orcid.org/0000-0001-8603-6052
  • Lais Fumincelli Universidade Federal de São Carlos (UFSCar). São Carlos (SP), Brasil. laiscelli13@gmail.com https://orcid.org/0000-0001-9895-8214
  • Angélica Martins de Souza Gonçalves Universidade Federal de São Carlos (UFSCar). São Carlos (SP), Brasil. angelicamartins@ufscar.br https://orcid.org/0000-0002-7265-5837
  • Aline Cristiane Caviccholi Okido Universidade Federal de São Carlos (UFSCar). São Carlos (SP), Brasil. alineokido@ufscar.br https://orcid.org/0000-0003-4309-5612

DOI:

https://doi.org/10.5216/ree.v22.59629

Palabras clave:

Criança, Enfermagem, Qualidade de vida relacionada à saúde, Transtornos do Neurodesenvolvimento, Cuidadores

Resumen

Objetivo: Identificar a qualidade de vida relacionada à saúde de cuidadores de crianças com transtornos do neurodesenvolvimento e analisar os fatores associados. Método: Estudo com delineamento observacional, transversal de abordagem quantitativa. Aplicado instrumento de caracterização e The Medical Outcomes Study 36-Item Short em 25 cuidadores. Utilizou-se o teste de Mann-Whitney e Correlação de Spearman, com nível de significância de 5%. Dentre os domínios da qualidade de vida relacionada à saúde, vitalidade e dor apresentaram os menores escores. Houve diferença significativa entre crença religiosa e os domínios aspectos sociais (p=0,046) e saúde mental (p=0,008) e, entre estado marital e os domínios aspectos sociais (p=0,029) e aspectos emocionais (p=0,035). Observou-se correlação negativa entre capacidade funcional e idade do cuidador. Conclusão: Cuidadores de crianças com transtornos do neurodesenvolvimento se percebem cansados e pouco dispostos. Crença religiosa, estado marital e idade se constituíram em fatores relacionados.

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Publicado

2020-09-14

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