Toronto’s Portuguese-speaking community potential for creating a social support-networks for breast cancer
DOI:
https://doi.org/10.5216/ree.v22.56605Palabras clave:
Social Support, Social Capital, Breast Neoplasms, Emigrants and Immigrants, Qualitative ResearchResumen
An ethnographic study explored ideas about the possibility of creating social support networks for breast cancer within the Portuguese-speaking community in Toronto (Canada). Nineteen men and women from Angolan, Brazilian and Portuguese communities informed about a social support network with a focus on enabling versus challenging conditions for its construction. The fundamental components in creating social support networks were: the demystification of breast cancer and its prevention, emphasis on health education, mobilizing volunteers and direct social support to women living with breast cancer. The potential enabling factors were the participation of older women as social leaders, and the utilization of schools and religious institutions. Perceived barriers were: breast cancer believed to be women’s disease, lack of knowledge about its cure/ rehabilitation, as well as a limited sensitivity to cancer. Social support networks should consider the communities’ diverse cultural and tangible needs, as well as more informal social support services.
Descargas
Citas
Cancer Care Ontario [Internet]. Ontario Cancer Statistics 2018. [access at: May 5, 2020]. Available at: https://www.cancercareontario.ca/sites/ccocancercare/files/assets/ANI_32628719_OCS2018_AODA_Mar2019_V02.pdf
Kroenke CH, Kwan ML, Neugut AI, Ergas IJ, Wright JD, Caan BJ, et al. Social networks, social support mechanisms, and quality of life after breast cancer diagnosis. Breast Cancer Res Treat. 2013;139(2):515-27. https://doi.org/1007/s10549-013-2477-2
Kroenke CH, Michael YL, Poole EM, Kwan ML, Nechuta S, Leas E, et al. Postdiagnosis social networks and breast cancer mortality in the after-Breast Cancer Pooling Project. Cancer. 2017;123(7):1228-37. https://doi.org/10.1002/cncr.30440
Tsai W, Lu Q. Perceived social support mediates the longitudinal relations between ambivalence over emotional expression and quality of life among Chinese American breast cancer survivors. Int J Behav Med. 2018;25:368-73. https://doi.org/10.1007/s12529-017-9705-9
Wong CY, Lu Q. Match between culture and social support: Acculturation moderates the relationship between social support and well-being of Chinese American breast cancer survivors. Qual Life Res. 2017;26:73-84. https://doi.org/10.1007/s11136-016-1362-y
Fukui HM, Menjívar C. Bound by inequality: The social capital of older Asians and Latinos in Phoenix, Arizona. Ethnography. 2015;16(4):416-37. https://doi.org/10.1177/1466138114565550
Campbell C. Social capital and health: contextualizing health promotion within local community networks. In: Baron S, Field J, Schuller T, editors. Social capital: critical perspectives. New York: Oxford University Press; 2000. p.182-96.
Villalonga-Olives E, Kawachi I. The measurement of bridging social capital in population health research. Health Place. 2015;36:47-56. http://dx.doi.org/10.1016/j.healthplace.2015.09.002
Nahapiet J. A social perspective: exploring the links between human capital and social capital. In: Burton- Jones A, Spender J-C, editors. The Oxford handbook of human capital. New York: Oxford University Press; 2011. p.71-95.
Statistics Canada [Internet]. Census Profile. [access at: Jun. 23, 2020]. Available at: https://www12.statcan.gc.ca/census-recensement/2011/dp-pd/prof/details/page.cfm?Lang=E&Geo1=CD&Code1=3520&Geo2=PR&Code2=35&Data=Count&SearchText=&SearchType=Begins&SearchPR=01&B1=All&Custom=#tabs1
City of Toronto [Internet]. 2019. Toronto – a data story on ethnocultural diversity and inclusion in Canada [access at: May 06, 2020]. Available at: https://www150.statcan.gc.ca/n1/pub/11-631-x/11-631-x2019002-eng.htm
American Cancer Society [Internet]. Cancer Facts and Statistics: Breast Cancer: Facts & Figures 2017-2018. American Cancer Society [access at: May 17, 2020]. Available at: https://www.cancer.org/research/cancer-facts-statistics.html
de Souza CB, Bacalhau MRN, Moura MJ, Volpi JH, Marques S, Rodrigues MRG. Aspectos da motivação para o trabalho voluntário com doentes oncológicos: um estudo colaborativo entre Brasil e Portugal. Psic Saúde & Doenças. 2003;4(2):267-76.
Applebaum B, Robbins S. Language access and health equity: changes under the Affordable Care Act. J Health Care Poor Underserved. 2016;27(2):416-26. https://doi.org/10.1353/hpu.2016.0064
Saint Michael’s Research Unit [Internet]. Reducing the language accessibility gap. Language Services Toronto. Program evaluation report [access at: Jun 20, 2019]. 2014. Available at: http://www.stmichaelshospital.com/crich/wp-content/uploads/LST_Program_Evaluation_Report_July31_one-up.pdf
Cabral, AV Giatti, L, Martínez-Hernáez, Á, Cherchiglia ML. Inequality in breast cancer care in a Brazilian capital city: a comparative analysis of narratives. Int J Equity Health. 2019;18(88):1-11. https://doi.org/10.1186/s12939-019-0989-z
Machado MX, Soares DA, Oliveira, SB. Meanings of breast cancer for women undergoing chemotherapy. Physis. 2017;27(3):433-51. https://doi.org/10.1590/S0103-73312017000300004
Carneiro ECSP, Silva RMCRA, Pereira ER, Lobosco, MPJ, Vallois EC, Lima MMS, et al. Experiences of family members of women with breast cancer: an integrative review. RSD. 2020;9(7):e76973483. http://dx.doi.org/10.33448/rsd-v9i7.3483
Borges ML, Caldeira S, Loyola-Caetano EA, Magalhães PAP, Areco FS, Panobianco MS. Spiritual/ religious coping of women with breast cancer. Religions. 2017;8(11):254. https://doi.org/10.3390/rel8110254
Miranda N, Portugal C [Internet]. Avaliação e monitorização dos rastreios oncológicos organizados de base populacional de Portugal: relatório de 2015 [access at: Nov. 20, 2018]. Available at: http://hdl.handle.net/10400.26/15603
Pereira SM [Internet]. A atribuição da causa do cancro da mama, perceção de risco e o locus de controlo de saúde nas mulheres portuguesas: predição da intenção comportamental. 2018. 65f. Dissertação (Mestrado em Psicologia Social da Saúde) – Instituto Universitário de Lisboa, Lisboa, 2018 [access at: Aug. 24, 2019]. Available at: http://hdl.handle.net/10071/18767
Patrão I, Leal I. Abordagem do impacto psicossocial do adoecer da mama. Psic Saúde & Doenças. 2004;5(1):53-73.
Pereira IG [Internet]. Qualidade de vida em mulheres com cancro da mama a receber quimioterapia. 2019. 47f. Dissertação (Mestrado Integrado em Psicologia) – Universidade do Minho, Escola de Psicologia, 2019 [access at: Feb, 04, 2020]. Available at: http://hdl.handle.net/1822/61511
Louro MIGC. Qualidade de vida da mulher com cancro de mama: o papel da imagem corporal. 2019. 169f. Dissertação (Mestrado em Psicologia Clínica) – Universidade Lusíada, 2019. Available at: http://hdl.handle.net/11067/4741
Bourdieu P. The forms of capital. In: Richardson JG, editor. Handbook of theory and research for the sociology of education. New York: Greenwood Press; 1986. p.241-58.
Cook KE. Using critical ethnography to explore issues in health promotion. Qual Health Res. 2005;15(1):129- 38. https://doi.org/10.1177/1049732304267751
Fontana A, Frey JH. The interview: from neutral stance to political involvement. In: Denzin NK, Lincoln YS, editors. The SAGE handbook of qualitative research. 3. ed. Thousand Oaks: Sage; 2005. p.361-76.
Paillé P, Mucchielli A. L’analyse qualitative en sciences humaines et sociales. 3. ed. Paris: Armand Colin; 2016.
Haynes-Maslow L, Allicock M, Johnson LS. Cancer support needs for African American breast cancer survivors and caregivers. J Cancer Educ. 2016;31(1):166-71. https://doi.org/10.1007/s13187-015-0832-1
Gondek M, Shogan M, Saad-Harfouche FG, Rodriguez EM, Erwin DO, Griswold K, Mahoney MC. Engaging immigrant and refugee women in breast health education. J. Cancer Educ. 2015;30:593-98. https://doi.org/10.1007/s13187-014-0751-6
Guruge S, Maheu C, Zanchetta MS, Fernandez F, Baku L. Social support for breast cancer management among Portuguese-speaking immigrant women. Can J Nurs Res. 2011;43(4):48-66.
Descargas
Publicado
Número
Sección
Licencia
Derechos de autor 2020 Revista Eletrônica de Enfermagem
Esta obra está bajo una licencia internacional Creative Commons Atribución 4.0.
