“Always helping with one thing or another”: social network of the family of people with ostomy

Abstract

A qualitative descriptive exploratory study that analyzed the social network of the families of ostomized patients. This study was conducted at the homes of seven families with ostomized patients, totaling 16 people. Data were collected using a semi-structured interview, a minimum map of relationships and simple observation with records in a field log. Data were evaluated via thematic content analysis. The social network is comprised of the family members; friends and neighbors; health professionals and services; groups of contacts and religious congregations. The webs of this network allow families to recognize their self-image, well-being, type of care, coping and adaptation in crisis situations. However, when analyzing health services, a gap was identified, showing the difficulties of receiving services from the health units in their regions, so they are dependent on support and care from specialized services.